Rare Disease Day 2019

Today is Rare Disease Day! The theme for this year is #ShowYourStripes, which I love because of its reference to the term “zebra”, which many of us with rare disorders call ourselves. This comes from the old phrase physicians turn to when dealing with patients; “when you hear hoofprints, think ‘horse’, not ‘zebra’.” This mindset (while reasonable) … Continue reading Rare Disease Day 2019

Advertisement

I tried. (Puppy love VS Chronic Illness)

Puppies. ❤ They are adorable, entertaining, and in this case, intelligent, balls of energy. They can also grow up to be the perfect service dog and companion, under the right circumstances. That was my hope when Justin and I adopted Kubrow, a 9 week-old pure-blooded German Shepherd puppy, last Friday. His boss at work told him … Continue reading I tried. (Puppy love VS Chronic Illness)

How Optic Nerve Hypoplasia (ONH) affects my ability to play video games

In my stream today, somebody asked a question that I thought might be interesting to share here as well. "Does your condition make it difficult to play fast-paced games like Warframe?"- WarLochNess Yes. It. Friggin. Does. I explain it more in-depth in the video, but here's the tl;dr: My eyes take a long time to … Continue reading How Optic Nerve Hypoplasia (ONH) affects my ability to play video games