It's that time of year again! As always, I get REALLY into #RareDiseaseDay festivities all throughout the month, culminating in a big charity event on Rare Disease Day, which falls on the last day of February. I'm excited to share that not only am I doing the usual Rare Disease Day charity stream on my … Continue reading Rare Disease Day 2023
Fond Memory of an Anxious Moment
I’m an artist. Not a professional, by any means. I lack confidence in my own work, which I’m sure is a common trope amongst creative types. About four years ago, my local art gallery asked for submissions for a regional art exhibit. I had just made a really poignant piece detailing life with a chronic … Continue reading Fond Memory of an Anxious Moment
Chronic Illness: What I’ve learned, un-learned, and am still learning
Visually impaired like me? I've got you- here's the audio recording of this article: https://soundcloud.com/sunny-ammerman/article-transcription-chronic-illness-what-ive-learned-un-learned-and-am-still-learning?si=893062727ce244f3a04e038368c94561&utm_source=clipboard&utm_medium=text&utm_campaign=social_sharing It's been such a long time, but I'm back! I really miss blogging. I think it's time I made it a habit again. A lot has happened since I was last posting actively here. I'll try my best to keep … Continue reading Chronic Illness: What I’ve learned, un-learned, and am still learning
How can VR help homebound individuals?
I am hosting an event on Altspace to discuss the potential for VR to have a positive impact on the lives of people who are homebound due to health, disabilities, or other reasons. I'll share what I have discovered regarding real technologies being developed to improve the lives of people who can't easily get out … Continue reading How can VR help homebound individuals?
Life updates ahoy! (+”Subtember”)
It has been a hectic past few months. H E C T I C . I was transitioned from the Healthy Indiana Plan (HIP) version of Medicaid to Traditional Medicaid, and the change created some chaos with the coverage of one of my important medications, Growth Hormone. I am GH deficient (among other things), so I … Continue reading Life updates ahoy! (+”Subtember”)
Upcoming Rare Disease Awareness Stream
🚨 Stream Announcement 🚨I’m always cautious about making plans to schedule a stream because my body likes to be as spontaneous as I am 🤣 but I wanted to give you guys a heads up that a couple friends and I are planning on having a special rare disease awareness stream on August 14th starting … Continue reading Upcoming Rare Disease Awareness Stream
Learning to enjoy life with a Disability
I haven't written an article in quite some time. I'll be honest, I've been grappling with something since I won my disability case. After the initial feelings of overwhelming relief started to wear off, I realized that I could now fully accept my status as a disabled individual and move on with my life. With … Continue reading Learning to enjoy life with a Disability
Boycott The Mighty
Up until now, there were no sponsored posts or advertisements that made them any money off of my stories. Now it looks like that is changing, and I feel betrayed.
Why I decided to celebrate winning my disability hearing by going bowling:
“I felt guilty because I myself have been exposed to the (incorrect, mind you) preconceived notion that if I can not work, I should not be able to do anything physical, ever.”
Rare Disease Day 2019
Today is Rare Disease Day! The theme for this year is #ShowYourStripes, which I love because of its reference to the term “zebra”, which many of us with rare disorders call ourselves. This comes from the old phrase physicians turn to when dealing with patients; “when you hear hoofprints, think ‘horse’, not ‘zebra’.” This mindset (while reasonable) … Continue reading Rare Disease Day 2019