Hey, folks! Especially folks in the education and financial aid space- I need your help. I really, really, really love learning, and I would absolutely love to earn a college degree, but so far that has been unattainable for me due to various disability related issues. After mulling this over in my head for QUITE … Continue reading Asking for Help
I am hosting an event on Altspace to discuss the potential for VR to have a positive impact on the lives of people who are homebound due to health, disabilities, or other reasons. I'll share what I have discovered regarding real technologies being developed to improve the lives of people who can't easily get out … Continue reading How can VR help homebound individuals?
It has been a hectic past few months. H E C T I C . I was transitioned from the Healthy Indiana Plan (HIP) version of Medicaid to Traditional Medicaid, and the change created some chaos with the coverage of one of my important medications, Growth Hormone. I am GH deficient (among other things), so I … Continue reading Life updates ahoy! (+”Subtember”)
🚨 Stream Announcement 🚨I’m always cautious about making plans to schedule a stream because my body likes to be as spontaneous as I am 🤣 but I wanted to give you guys a heads up that a couple friends and I are planning on having a special rare disease awareness stream on August 14th starting … Continue reading Upcoming Rare Disease Awareness Stream
I haven't written an article in quite some time. I'll be honest, I've been grappling with something since I won my disability case. After the initial feelings of overwhelming relief started to wear off, I realized that I could now fully accept my status as a disabled individual and move on with my life. With … Continue reading Learning to enjoy life with a Disability
Up until now, there were no sponsored posts or advertisements that made them any money off of my stories. Now it looks like that is changing, and I feel betrayed.
“I felt guilty because I myself have been exposed to the (incorrect, mind you) preconceived notion that if I can not work, I should not be able to do anything physical, ever.”
Today is Rare Disease Day! The theme for this year is #ShowYourStripes, which I love because of its reference to the term “zebra”, which many of us with rare disorders call ourselves. This comes from the old phrase physicians turn to when dealing with patients; “when you hear hoofprints, think ‘horse’, not ‘zebra’.” This mindset (while reasonable) … Continue reading Rare Disease Day 2019
It may seem a little silly for someone who struggles with a disability to "set goals". I think that for the most part, society expects disabled individuals to just sit at home and do nothing. They can't work. They can't do the same things neurotypical folks can do, so why would they focus on setting … Continue reading Setting goals for 2019
There is a lot of discourse online about abortion access. I have been doing my damndest not to get involved, but it’s getting so hard seeing people that I know and love making terribly ignorant comments and completely demonizing women who needed to have abortions done. A year or so ago, I wanted to kill … Continue reading The Abortion Debate