Asking for Help

Hey, folks! Especially folks in the education and financial aid space- I need your help. I really, really, really love learning, and I would absolutely love to earn a college degree, but so far that has been unattainable for me due to various disability related issues. After mulling this over in my head for QUITE … Continue reading Asking for Help


Rare Disease Day 2019

Today is Rare Disease Day! The theme for this year is #ShowYourStripes, which I love because of its reference to the term “zebra”, which many of us with rare disorders call ourselves. This comes from the old phrase physicians turn to when dealing with patients; “when you hear hoofprints, think ‘horse’, not ‘zebra’.” This mindset (while reasonable) … Continue reading Rare Disease Day 2019