Asking for Help

Hey, folks! Especially folks in the education and financial aid space- I need your help. I really, really, really love learning, and I would absolutely love to earn a college degree, but so far that has been unattainable for me due to various disability related issues. After mulling this over in my head for QUITE … Continue reading Asking for Help

#RareCancerDay 2019 Roundup

October 1st 2019 was the first annual Rare Cancer Day event promoted by the National Organization of Rare Disorders (NORD). With their permission and enthusiastic support, I was permitted to rebroadcast their webinar and share stories of patients living with a variety of rare cancers. I hosted an awareness stream on my Twitch channel which … Continue reading #RareCancerDay 2019 Roundup

A quick rundown of my diagnoses / disabilities

Septo-Optic Dysplasia (SOD) Which caused: -  Panhypopituitarism (PHP) I'm being treated for the following deficiencies caused by PHP: -Hypothyroidism-Hypogonadism-Adult Growth Hormone Deficiency-Secondary Adrenal Insufficiency -  Optic Nerve Hypoplasia Causing partial blindness due to: -Bitemporal Hemianopsia (complete loss of peripheral vision)-Double Nystagmus (which moves at different speeds at different directions)-Overall low vision -  Absence of Septum Pellucidum Here are … Continue reading A quick rundown of my diagnoses / disabilities