VR Spoonies Chronic Illness & Disability Support Group Celebrates 3rd Anniversary

Three years ago today, I hosted the very first meeting for what is now a really tight-knit, wonderful community of folks with a wide variety of conditions which impact day-to-day functionality.

Chronic Illness: What I’ve learned, un-learned, and am still learning

Visually impaired like me? I've got you- here's the audio recording of this article: https://soundcloud.com/sunny-ammerman/article-transcription-chronic-illness-what-ive-learned-un-learned-and-am-still-learning?si=893062727ce244f3a04e038368c94561&utm_source=clipboard&utm_medium=text&utm_campaign=social_sharing It's been such a long time, but I'm back! I really miss blogging. I think it's time I made it a habit again. A lot has happened since I was last posting actively here. I'll try my best to keep …

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#RareCancerDay 2019 Roundup

October 1st 2019 was the first annual Rare Cancer Day event promoted by the National Organization of Rare Disorders (NORD). With their permission and enthusiastic support, I was permitted to rebroadcast their webinar and share stories of patients living with a variety of rare cancers. I hosted an awareness stream on my Twitch channel which …

Life updates ahoy! (+”Subtember”)

It has been a hectic past few months. H E C T I C .  I was transitioned from the Healthy Indiana Plan (HIP) version of Medicaid to Traditional Medicaid, and the change created some chaos with the coverage of one of my important medications, Growth Hormone. I am GH deficient (among other things), so I …

Learning to enjoy life with a Disability

I haven't written an article in quite some time. I'll be honest, I've been grappling with something since I won my disability case. After the initial feelings of overwhelming relief started to wear off, I realized that I could now fully accept my status as a disabled individual and move on with my life. With …

February Art Dump 2019

February was a month full of new projects and lots of practice leading to improved drawing techniques! Here is everything I created this month, including idle sketches and doodles:   I bought a new toy; a pyrography tool so that I can attempt leather burning. I was inspired by a very talented artist whose Twitch …

Why I choose to fight ignorance with patience

I've been a chronic illness advocate for quite a while now, and along the way I have encountered a wide variety of folks from all different backgrounds and levels of understanding about what it's like to be chronically ill or to live with a disability. Along the way, I have made connections with other chronic …

Attention Parents with Disabilities:

Foster Moms and Dads- Can we talk about something kinda heavy really quick? I really want to adopt eventually. Justin does, too. We can’t have children of our own because my health is too poor for me to become pregnant. I love kids, and I think Justin and I will be excellent parents. The thing …

A quick rundown of my diagnoses / disabilities

Septo-Optic Dysplasia (SOD) Which caused: -  Panhypopituitarism (PHP) I'm being treated for the following deficiencies caused by PHP: -Hypothyroidism-Hypogonadism-Adult Growth Hormone Deficiency-Secondary Adrenal Insufficiency -  Optic Nerve Hypoplasia Causing partial blindness due to: -Bitemporal Hemianopsia (complete loss of peripheral vision)-Double Nystagmus (which moves at different speeds at different directions)-Overall low vision -  Absence of Septum Pellucidum Here are …

Ambitions

This is just a short life update. I am still planning on sitting down and writing a post about everything that has been going on with me lately, but that one in particular is going to take a couple of hours to write. Please bear with me until I can find the time! I’m actually …