Chronic Illness: What I’ve learned, un-learned, and am still learning

Visually impaired like me? I've got you- here's the audio recording of this article: https://soundcloud.com/sunny-ammerman/article-transcription-chronic-illness-what-ive-learned-un-learned-and-am-still-learning?si=893062727ce244f3a04e038368c94561&utm_source=clipboard&utm_medium=text&utm_campaign=social_sharing It's been such a long time, but I'm back! I really miss blogging. I think it's time I made it a habit again. A lot has happened since I was last posting actively here. I'll try my best to keep …

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What PE taught me about my Rare Disease

https://soundcloud.com/sunny-ammerman/what-pe-taught-me-about-my-rare-disease I had originally planned for this article to be about my history of failing Physical Education (PE) classes. I suspected that because I was not properly educated on the health issues caused by my rare disease at the time, and had an inability to exercise like my peers, that this had a negative impact …

Why I decided to celebrate winning my disability hearing by going bowling:

“I felt guilty because I myself have been exposed to the (incorrect, mind you) preconceived notion that if I can not work, I should not be able to do anything physical, ever.”

Setting goals for 2019

It may seem a little silly for someone who struggles with a disability to "set goals". I think that for the most part, society expects disabled individuals to just sit at home and do nothing. They can't work. They can't do the same things neurotypical folks can do, so why would they focus on setting …

My Disability Hearing

Yesterday was one of my most stressful days in a very long time, but it was also a day filled with the joy of relief that the hearing was over, no longer looming over my head with fears that I might somehow ruin everything I have been working for over the last year and a …

Breakdown and a Revelation

I recently came to a revelation. I have known for a long time now that I am disabled, and because of this, I am unable to work. I tried to work twice, and both times, I had to quit because of my poor health. The second time, I wound up in the hospital and I …

How Optic Nerve Hypoplasia (ONH) affects my ability to play video games

In my stream today, somebody asked a question that I thought might be interesting to share here as well. "Does your condition make it difficult to play fast-paced games like Warframe?"- WarLochNess Yes. It. Friggin. Does. I explain it more in-depth in the video, but here's the tl;dr: My eyes take a long time to …

A quick rundown of my diagnoses / disabilities

Septo-Optic Dysplasia (SOD) Which caused: -  Panhypopituitarism (PHP) I'm being treated for the following deficiencies caused by PHP: -Hypothyroidism-Hypogonadism-Adult Growth Hormone Deficiency-Secondary Adrenal Insufficiency -  Optic Nerve Hypoplasia Causing partial blindness due to: -Bitemporal Hemianopsia (complete loss of peripheral vision)-Double Nystagmus (which moves at different speeds at different directions)-Overall low vision -  Absence of Septum Pellucidum Here are …

Adrenal Crisis Update

Before I get into this update post, I want to apologize for my absence. My health took a turn after that adrenal crisis I wrote about in my previous article. It has been difficult to keep on top of things. I did get to go on vacation with my dad for a week, which turned …

The Difference between ONH and SOD

I have been confused by this for a very long time. Some credible online resources claim that Optic Nerve Hypoplasia (ONH), and Septo-Optic Dysplasia (SOD) are the same thing. I went on thinking that was true for the longest time, until I dug a little deeper and learned that there is, in fact, a difference.