Upcoming Rare Disease Awareness Stream

🚨 Stream Announcement 🚨I’m always cautious about making plans to schedule a stream because my body likes to be as spontaneous as I am 🤣 but I wanted to give you guys a heads up that a couple friends and I are planning on having a special rare disease awareness stream on August 14th starting …

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Boycott The Mighty

Up until now, there were no sponsored posts or advertisements that made them any money off of my stories. Now it looks like that is changing, and I feel betrayed.

Setting goals for 2019

It may seem a little silly for someone who struggles with a disability to "set goals". I think that for the most part, society expects disabled individuals to just sit at home and do nothing. They can't work. They can't do the same things neurotypical folks can do, so why would they focus on setting …

Late Night Confessions

It's going on 11pm. I've been contemplating sleep since 8. Rather than catching some sweet sweet "Z"s however, my mind is fixated on a regret I have, and now I feel the need to write about it so I can get this off my chest. I regret that I never reported one of my ex-bosses …

Breakdown and a Revelation

I recently came to a revelation. I have known for a long time now that I am disabled, and because of this, I am unable to work. I tried to work twice, and both times, I had to quit because of my poor health. The second time, I wound up in the hospital and I …

Why I choose to fight ignorance with patience

I've been a chronic illness advocate for quite a while now, and along the way I have encountered a wide variety of folks from all different backgrounds and levels of understanding about what it's like to be chronically ill or to live with a disability. Along the way, I have made connections with other chronic …

Spoonie flash game idea! (updated 1/11)

I have an idea for a browser-based spoonie flash game. I'm going to lean how to use Adobe Animate to make it, and I have a basic concept for the game, but I would really love to get some feedback and suggestions from my fellow spoonies. The point of this game is to help people …

Now hiring full-time employees: No pay, no benefits.

Now hiring full-time employees; You will be expected to make regular appointments with clients, and keep up with them often. Additionally, you must follow a strict daily routine if you want to work efficiently. Even then, there is a chance your daily workflow may be interrupted by sudden unexpected changes, so you must be able …

Chronic Illness Stories: Tales from High School and a message to teachers

This is my first blog post here regarding my life with chronic illness. I have a congenital condition called "Panhypopituitarism". Don't know what that is? I'm not surprised, it's very rare. That's why I made this short video explaining it. If you went to high school with me, you probably know I was on the …