Late Night Confessions

It's going on 11pm. I've been contemplating sleep since 8. Rather than catching some sweet sweet "Z"s however, my mind is fixated on a regret I have, and now I feel the need to write about it so I can get this off my chest. I regret that I never reported one of my ex-bosses …

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My Disability Hearing

Yesterday was one of my most stressful days in a very long time, but it was also a day filled with the joy of relief that the hearing was over, no longer looming over my head with fears that I might somehow ruin everything I have been working for over the last year and a …

Take a peek into my life (with pictures!)

I take for granted the fact that normally healthy people never really get to experience what it's like to manage a chronic illness, mainly because those of us who are chronically ill tend to hide our bad days. I don't want anyone to see me struggling- I'm afraid of worrying people, or looking like I'm …

Breakdown and a Revelation

I recently came to a revelation. I have known for a long time now that I am disabled, and because of this, I am unable to work. I tried to work twice, and both times, I had to quit because of my poor health. The second time, I wound up in the hospital and I …

Why I choose to fight ignorance with patience

I've been a chronic illness advocate for quite a while now, and along the way I have encountered a wide variety of folks from all different backgrounds and levels of understanding about what it's like to be chronically ill or to live with a disability. Along the way, I have made connections with other chronic …

Attention Parents with Disabilities:

Foster Moms and Dads- Can we talk about something kinda heavy really quick? I really want to adopt eventually. Justin does, too. We can’t have children of our own because my health is too poor for me to become pregnant. I love kids, and I think Justin and I will be excellent parents. The thing …

It has been an awesome day, and that sucks.

This is a throwback to an older article I wrote, titled "The guilt of feeling well". I wrote that a long while back, yet the topic is still quite relevant to me. Today, I had a really great day, energy-wise. I did so much, and as I sit here writing this, I still feel vital …

A quick rundown of my diagnoses / disabilities

Septo-Optic Dysplasia (SOD) Which caused: -  Panhypopituitarism (PHP) I'm being treated for the following deficiencies caused by PHP: -Hypothyroidism-Hypogonadism-Adult Growth Hormone Deficiency-Secondary Adrenal Insufficiency -  Optic Nerve Hypoplasia Causing partial blindness due to: -Bitemporal Hemianopsia (complete loss of peripheral vision)-Double Nystagmus (which moves at different speeds at different directions)-Overall low vision -  Absence of Septum Pellucidum Here are …

Spoonie flash game idea! (updated 1/11)

I have an idea for a browser-based spoonie flash game. I'm going to lean how to use Adobe Animate to make it, and I have a basic concept for the game, but I would really love to get some feedback and suggestions from my fellow spoonies. The point of this game is to help people …

Crossing Your Bridge: The difference between defeatism and realism

A sign on a bridge says that it can hold two tons of weight. If the bridge builder tells you you can not drive a three ton vehicle across it, he is not being a defeatist, he is admitting that the bridge has limits and he is protecting it from being destroyed. I think that …