I’m not very active on social media, but I do have accounts on the following platforms. I don’t recommend using them to reach out to me if you are wanting a timely response, as I don’t log in often, or at all on some platforms.
Have any questions or comments you would like to send via email?
Please fill out the contact form below and I will get back with you as soon as I read your message. 🙂 If you would prefer to schedule a Zoom meeting to chat and ask questions directly, please feel free to schedule a meeting here.
I am happy to volunteer my time to assist fellow rare disease patients, especially regarding Septo-Optic Dysplasia, Optic Nerve Hypoplasia, and Panhypopituitarism. I am not a medical professional, but I can share with you my experiences and answer the questions I am able to. If you need help with something I’m not familiar with, I will happily do all I can to help connect you with the right resources!
I am also very involved in the Virtual Reality community and I love connecting with developers of XR products to help them improve accessibility in their products for folks with disabilities. While I do not have physical mobility limitations myself, I do know many folks in the VR space who do. I can offer my own personal insights as well where my low vision and partial blindness are concerned. Please feel free to reach out if you want to chat about this!
Please also consider reaching out to the Pituitary Network Association for panhypopituitarism related queries, and utilize resources available at the National Organization for Rare Disorders (NORD) for general rare disease info.