My name is Sunny. I’m a hobbyist artist and chronic illness / rare disease advocate and activist. I write articles about my life with my rare diseases as well as social and political issues pertaining to chronic illnesses, invisible disabilities, and rare diseases in general.
Rare Disease Day 2023
It’s that time of year again! As always, I get REALLY into #RareDiseaseDay festivities all throughout the month, culminating in a big charity event on Rare Disease Day, which falls on the last day of February. I’m excited to share that not only am I doing the usual Rare Disease Day charity stream on my…
Fond Memory of an Anxious Moment
I’m an artist. Not a professional, by any means. I lack confidence in my own work, which I’m sure is a common trope amongst creative types. About four years ago, my local art gallery asked for submissions for a regional art exhibit. I had just made a really poignant piece detailing life with a chronic…
VR Spoonies Chronic Illness & Disability Support Group Celebrates 3rd Anniversary
Three years ago today, I hosted the very first meeting for what is now a really tight-knit, wonderful community of folks with a wide variety of conditions which impact day-to-day functionality.