Asking for Help

Hey, folks! Especially folks in the education and financial aid space- I need your help. I really, really, really love learning, and I would absolutely love to earn a college degree, but so far that has been unattainable for me due to various disability related issues. After mulling this over in my head for QUITE …

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It’s been a while!

I apologize for not updating this blog in quite some time. I'll admit, things got so hectic and I had neglected this site so much as a result that I even considered giving up on blogging and not renewing the domain name. I'm glad I decided against that, because I think things are beginning to …

Rare Disease Day 2021 YouTube Livestream and Valheim Giveaway!

I’ll be hosting a live stream on YouTube to raise awareness for Rare Disease Day. I’ll read aloud patient stories found on the official Rare Disease Day website and encourage viewers to donate to causes that benefit patients living with rare diseases. During the stream, I'll play Valheim to pass the time while chatting with …

Mom’s Near Death Experience

Earlier today, I attended an EvolVR discussion group in a Virtual Reality social platform called Altspace where people were invited to share their thoughts about death and whether or not they believe there is an afterlife. I showed up near the end of the event, and people were talking about the phenomenon of near death …

NORD’s Living Rare Forum was Virtual in 2020, Here’s how it went

https://soundcloud.com/sunny-ammerman/nords-living-rare-forum-was-virtual-in-2020-heres-how-it-went As a rare disease patient and advocate, I have been an enthusiastic supporter of the National Organization for Rare Disorders (NORD) for many years, so I was absolutely thrilled when I discovered the annual NORD Living Rare, Living Stronger Patient Forum was coming to Cleveland, Ohio in 2020! It's only a few hours away …

What PE taught me about my Rare Disease

https://soundcloud.com/sunny-ammerman/what-pe-taught-me-about-my-rare-disease I had originally planned for this article to be about my history of failing Physical Education (PE) classes. I suspected that because I was not properly educated on the health issues caused by my rare disease at the time, and had an inability to exercise like my peers, that this had a negative impact …

Site Changes and Life Updates

It's been quite a while since I've published a new article here! There are many reasons for that, from a long period of extended illness (which seems to be getting under control now thanks to a change in my treatment) to sudden and very exciting new life changes that I am eager to share with …

5 tips for keeping good mental health while stuck at home (from someone who has had lots of practice)

I've got eyesight so bad I can't legally obtain a drivers license, and health so unpredictable I'm unable to work, so I've had to get used to spending a lot of time stuck at home. When states across the U.S. started ordering residents to shelter in place to flatten the curve of the rapidly growing …

COVID-19: Plan, don’t panic!

Here is a video I just released on YouTube sharing how I plan to protect myself from the growing coronavirus pandemic. I am at higher risk than most because I have a compromised immune system. Even though I believe it is important to stay vigilant and plan ahead, I am not giving in to the …

How can VR help homebound individuals?

I am hosting an event on Altspace to discuss the potential for VR to have a positive impact on the lives of people who are homebound due to health, disabilities, or other reasons. I'll share what I have discovered regarding real technologies being developed to improve the lives of people who can't easily get out …