Rare Disease Day 2024

It's that time of year again! Every year on Rare Disease Day, I host a special live stream on Twitch to raise awareness of rare diseases and encourage everyone to donate to any of the wonderful charities out there making a difference in the lives of folks living with rare diseases! I'm planning on going …

Extra Life 2023

Kaycee's Mod- but every time I win or lose a run, you get a chance to win a FREE copy of Inscryption! The creator of "Inscryption" has yet again generously donated a bunch of steam keys for my Extra Life stream! This is one of my all-time favorite games, so I am just over the moon that he is so supportive and willing to give free copies of his game to help raise money for Riley Children's Hospital through Extra Life. He gave me EIGHT keys in total, so there will be plenty of opportunities for you to win a copy!

When your physical symptoms are mistaken as character flaws

My hope in writing this is to raise awareness for what can happen when a child’s illness is not taken into consideration when they are struggling. Your “lazy” kid might be experiencing physical symptoms. Your “unmotivated” high schooler who keeps falling asleep in class might be struggling with intense fatigue.

Rare Disease Day 2023

It's that time of year again! As always, I get REALLY into #RareDiseaseDay festivities all throughout the month, culminating in a big charity event on Rare Disease Day, which falls on the last day of February. I'm excited to share that not only am I doing the usual Rare Disease Day charity stream on my …

Fond Memory of an Anxious Moment

I’m an artist. Not a professional, by any means. I lack confidence in my own work, which I’m sure is a common trope amongst creative types. About four years ago, my local art gallery asked for submissions for a regional art exhibit. I had just made a really poignant piece detailing life with a chronic …

VR Spoonies Chronic Illness & Disability Support Group Celebrates 3rd Anniversary

Three years ago today, I hosted the very first meeting for what is now a really tight-knit, wonderful community of folks with a wide variety of conditions which impact day-to-day functionality.

Chronic Illness: What I’ve learned, un-learned, and am still learning

Visually impaired like me? I've got you- here's the audio recording of this article: https://soundcloud.com/sunny-ammerman/article-transcription-chronic-illness-what-ive-learned-un-learned-and-am-still-learning?si=893062727ce244f3a04e038368c94561&utm_source=clipboard&utm_medium=text&utm_campaign=social_sharing It's been such a long time, but I'm back! I really miss blogging. I think it's time I made it a habit again. A lot has happened since I was last posting actively here. I'll try my best to keep …

It’s been a while!

I apologize for not updating this blog in quite some time. I'll admit, things got so hectic and I had neglected this site so much as a result that I even considered giving up on blogging and not renewing the domain name. I'm glad I decided against that, because I think things are beginning to …

Rare Disease Day 2021 YouTube Livestream and Valheim Giveaway!

I’ll be hosting a live stream on YouTube to raise awareness for Rare Disease Day. I’ll read aloud patient stories found on the official Rare Disease Day website and encourage viewers to donate to causes that benefit patients living with rare diseases. During the stream, I'll play Valheim to pass the time while chatting with …

Mom’s Near Death Experience

Earlier today, I attended an EvolVR discussion group in a Virtual Reality social platform called Altspace where people were invited to share their thoughts about death and whether or not they believe there is an afterlife. I showed up near the end of the event, and people were talking about the phenomenon of near death …